DIADISS - Distress and Quality of Life in suspected lung cancer patients

last updated 06-07-2016

Distress experience and quality of life of patients with suspected lung cancer during the period of the diagnostic workup and the period between diagnosis and start of treatment

 
Domain: CancerPalliative care needs
Period: 09-2013 to 09-2017
Status: 
Current

The purpose of this study is to gain insight into the distress experience and quality of life of suspected lung cancer patients during the period of the diagnostic workup and the period between diagnosis and start of treatment.

Background

 A life-threatening disease often leads to distress, an emotional experience that can interfere with coping. The period of disease workup, getting the diagnosis and awaiting treatment is the start of the adaptation process from ‘normal’ patient to uncertain status of ‘lung cancer patient’. Studies in lung cancer patients show high prevalence of distress during the course of the disease.

However, until now, very little is known about distress and quality of life during the diagnostic phase and most studies published so far were in breast cancer.

Aim

To gain insight into the emotional distress experience of suspected lung cancer patients during their diagnostic workup and the period between diagnosis and start of treatment. This insight will help to improve care and support in line with patient needs.

Methods

Prospective study to describe and explore patients' psychosocial trajectories, by the use of questionnaires (PROs on distress, quality of life and illness perception). Qualitative interview of key care stakeholders in the participating hospitals to describe the 'usual' care and identify elements that play a role in the workup process flow.

Project group

Researcher: Kathleen Belien
Promotor: Paul Van Royen (University of Antwerp)
Promotor: Paul Germonpré (University of Antwerp)
Promotor: Koen Pardon
Promotor: Luc Deliens
Project group member: Peter Theuns
Pneumologists: Elke Vandenbroucke (AZ Monica), Els De Droogh (Ziekenhuis Netwerk Antwerpen), Ann-Marie Morel (Sint-Jozef Kliniek)

Funding: 

Thoracale Oncologie Groep Antwerpen

Projectpartners

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