Since its creation, the reference group has completed the following milestones:
- Developing and agree an annual work plan
- Developing a webpage on the EAPC website and associated websites
- Strengthening links with the WHO, PHPCI
- Establishing links with the former EAPC task forces on Volunteers and Family Caregivers
- At EAPC 2017 in Madrid:
- the first closed meeting of the reference group to agree about aims and milestones of the steering group
- the first meeting to establish the first public meeting of the public health network - At EAPC 2018 in Bern:
- Promoting a public health stream in the conference: this stream was integrated into the scientific program and made visual in the program booklet. The stream was applauded by many.
- closed meeting on the 26th of May 2018 at the EAPC congress in Bern
- open meeting on the 24th of May 2018 at the EAPC congress in Bern - Guidelines/documents for public health policy development, e.g. building on the WHO manual on how to implement palliative care and evaluate implementation, or building on the evidence from community development actions for palliative care
- Methods: Summary of WHO documents
- Outcome: Publication in the Springer Textbook of Palliative Care. (Maetens A., Cohen J., Harding R. (2018) A Public Health Approach to Integrate Palliative Care into a Country’s Health-Care System: Guidance as Provided by the WHO. In: MacLeod R., Van den Block L. (eds) Textbook of Palliative Care. Springer, Cham - Actions and strategies for New Public Health approaches in end-of-life care research:
- Outcome: publication in the Springer Textbook of Palliative Care. Sallnow L., Paul S. (2018) New Public Health Approaches to End-of-Life Care. In: MacLeod R., Van den Block L. (eds) Textbook of Palliative Care. Springer, Cham -
Conferences covering the public health and end-of-life care domain (policy and research) –> e.g. embedded within EAPC RN seminars or an EAPC pre-conference
-Outcome: The reference group organized the 1st International Seminar of EAPC RN and the EAPC Reference Group on Public Health and Palliative Care “Public Health Research in Palliative Care: Shifting the Paradigm”, 25 & 26 October 2018, Brussels
- The 2nd International Seminar of EAPC RN and the EAPC Reference Group on Public Health and Palliative Care “Public Health Research in Palliative Care: Towards Solutions for Global Challenges’’, 17 & 18 November 2020, online. Hosted by the All-Ireland Institute of Hospice and Palliative Care. Abstracts seminar in journal Palliative Care and Social Practice: https://journals.sagepub.com/doi/full/10.1177/26323524211003703 - Improving public health end-of-life care research using routinely collected data.
- Methods: review of evidence
- Outcomes: established Taskforce Big Data in End-of-Life Care Research; collaborating with Taskforce on systematic review. Review registered (see planning Taskforce) - Training programs:
- Workshop on Big Data and Palliative Care Research in Brussels 10-11 April 2018
- Workshop on Big Data and Palliative Care Research in Stockholm 6-8 February 2019
- Preconference workshop, 12 October 2019, Norman Lindsey room, Fairmont Resort Blue Mountains, at the 6th Public Health Palliative Care International Conference,
- Second compassionate communities research methods workshop – 1st December 2020, online - Seminar “Community approaches to supporting health and well-being and end-of-life care in Older people with multimorbidities” hosted by Academic Palliative and Supportive Care Studies Group and funded by ESRC / NWSSDTP on the 22nd of February 2019 in Liverpool, United Kingdom, with presentations by:
- Prof. Luc Deliens: “Public Health and community approaches to supporting older people with co-morbidities”
- Prof. Allan Kellehear: “A public health approach to palliative care: creating compassionate communities” - At the EAPC 2019 in Berlin:
- Open meeting of the RG on the 23rd of May 2019 - At the 11th EAPC World Research Congress 2020 7th to 9th October 2020: online exhibition stand of the Reference Group
