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Policy recommendations and other output

Policy and practice recommendations

PALLIATIVE CARE FOR DIGNITY IN OLD AGE: Addressing the Needs of Older People in Long-Term Care Facilities in Europe

Based on consultations organised with older people and people with dementia and their carers, the Palliative Care for Older People in Care and Nursing Homes in Europe (PACE) project has resulted in important recommendations for policy and decision-makers to ensure the implementation of accessible and quality palliative care.

pdf bestandpace_-_policy_recommendations_final.pdf (562 kB)

Reports

1. 2020 Mapping palliative care systems in long term care facilities in Europe - PACE Work Package 1 and EAPC Taskforce Report, 2016
pdf filemapping_palliative_care_systems_in_european_ltcfs_eapc_report_2016.pdf (2.54 MB)

2. 2019 Summary report on the PACE MOOC - Improving palliative care in care homes for older people 
pdf filemooc_report.pdf (1.05 MB)

3. 2020 Summary report on the PACE MOOC - Improving palliative care in care homes for older people pdf fileMOOC report 2020.pdf (501 KB)

4. 2021 Summary report on the PACE MOOC - Improving palliative care in care homes for older people pdf fileMOOC 2021 report.pdf (170 KB)

Presentations and Posters

1.    2019 PACE Final Policy Event - Presentations from the Policy Workshop “Palliative care is everybody’s business!”
L. Van den Block, L. Deliens (VUB), K. Froggatt (Lancaster University), Nhu Tram, Borja Arrue (Age Platform), Dianne Gove (Alzheimer Europe) presenting the main outcomes of PACE project
pdf file1_pace_2019_luc_intro1.pdf (1.6 MB)
pdf file2_pace_2019_finalevent_-_steps_lieve1.pdf (2.18 MB)
pdf file3_froggatt_pace_brussels_jan_24_20191.pdf (4.31 MB)
pdf file4_pace_2019_policy_recommendations1.pdf (433 KB)
pdf file5_pace_2019_luc_conclusion1.pdf (2.95 MB)
pdf file6_pace_2019_lieve_conclusion1.pdf (17.79 MB)


2.    K. Szczerbińska, A. Pac, V. Kijowska, A. Stodolska, I. Barańska, H. Finne-Soveri, G. Gambassi, B. Onwuteaka-Philipsen, S. Payne, Van Den Noortgate, M. Vernooij-Dassen, L. Deliens, L. Van den Block on behalf of the PACE group. What is the relationship between socio-economic status and quality of end-of-life care? Preliminary results of cross-sectional data from the PACE study. EUGMS congress, Lisbon. October 2016
pdf fileplakat_05_10_2016_eugms-2_oct_viola_2016.10.02_final.pdf (969 KB)

3.    2016 Anne B. Wichmann; Eddy M.M. Adang; Peep F.M. Stalmeier; Sinta M. Kristanti; Lieve Van den Block; Myrra JFJ. Vernooij-Dassen; Yvonne M.P. Engels. The use of QALYs in cost-effectiveness analyses in palliative care. Mapping the debate.

4.    2016 Sowerby, E, Collingridge Moore, D, Van den Block, L, Froggatt, K, Payne, S: ‘Engaging nursing homes (NH) in the PACE study: comparing recruitment in observational and intervention research designs.’
pdf fileeapc_poster_dcm_02062016.pdf (363 KB)

5.    2016 Van den Block L, Finne-Soveri H, Gambassi G, Onwuteaka-Philipsen B, Payne S, Szczerbinska K, Van Den Noortgate N, Vernooij-Dassen M, Deliens L on behalf of PACE. Palliative care in carehomes in Europe: EU FP7 PACE project (2014-2019). Alzheimer's Disease
pptx filepace-adi_poster_final.pptx (5.38 MB)

6.    2016 Collingridge Moore D, Froggatt K, Sowerby E, Payne S 2016 ‘It’s not really our thing’ Lessons in engaging care homes in palliative care research. Poster presented at the Palliative Care Congress, Glasgow. March 2016. pdf filepcc_ioelc_poster_final_04032016.pdf (329 KB)

7. 2020 Miranda R, van der Steen JT, Smets T, et al. , Comfort and clinical events at the end of life of nursing home residents with advanced, non-advanced and without dementia  pdf fileEAPC_2020_Comfort_ClinicalEvents_final.pdf (6 MB)

Interview

1.    'Changing attitudes to palliative care for older people' - Anne-Sophie Parent's and Lieve Van den Block’s interview in Impact - Multidisciplinary Health Research May 2017

In May 2017, an article about the (targeted) impact of the PACE project appeared in the international magazine of Science Impact Ltd, an edition titled ‘multidisciplinary health research’.  The magazine is printed in English (https://impact.pub/ ) and contains articles on changing the attitudes to palliative care for older people, patient-centred cancer care, but also on biases in clinical trials, rare diseases and wellbeing.

Project coordinator Lieve Van den Block (VUB) and partner leads Bregje Onwuteaka-Philipsen (VUMC) and Anne-Sophie Parent (Age Platform Europe) were interviewed to discuss the challenges (< It is as much about changing the culture of the care homes, as it is the attitudes of individuals within them>) of the project thus far and to voice their opinion on the scientific and practical impact (< The team hopes to gain an understanding of which countries, systems, and practices might be related to higher quality of dying>) of the project. 

pdf filepace_impactpublication_0.pdf (605 KB)